Quantifying multi-facted needs in a district disability clinic population: analysis of data captured at point of care and development of a disabilities terminology set and disabilities complexity scale.

Horridge, Karen, Harvey, Carl, McGarry, Kenneth, Williams, Jane, Whittlingum, Gabriel, Busk, Mary, Fox, Suzanne, Baird, Gillian and Spencer, Andy (2016) Quantifying multi-facted needs in a district disability clinic population: analysis of data captured at point of care and development of a disabilities terminology set and disabilities complexity scale. Developmental Medicine and Child Neurology, 58 (6). pp. 570-580. ISSN 1469-8749

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Abstract

AIMS To develop a Disabilities Terminology Set and quantify the multifaceted needs of disabled children and their families in a district disability clinic population.
METHOD Data from structured electronic clinic letters of children attending paediatric disability clinics from June 2007 to May 2012 in Sunderland, north-east England collected at the point of clinical care were analysed to determine appropriate terms for consistent recording of each need and issue. Terms were collated to count the number of needs per child. RESULTS A Systemized nomenclature of Medicine – Clinical Terms subset of 296 terms was identified and published, and 8392 consultations for 1999 children were reviewed. The required number of clinic appointments correlated strongly with the number of needs identified. Children with intellectual disabilities in addition to cerebral palsy and epilepsy had more than double the number of conditions, technology dependencies, and family-reported
issues than those without.

Item Type: Article
Subjects: Sciences > Health Sciences
Divisions: Faculty of Applied Sciences > Department of Pharmacy Health and Wellbeing
Depositing User: Kenneth McGarry
Date Deposited: 28 Apr 2016 09:55
Last Modified: 26 Sep 2017 04:14
URI: http://sure.sunderland.ac.uk/id/eprint/6128

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