Perceptions of Adolescent Patients of the “Lived Experience” of Type 1 Diabetes

King, Kathryn M., King, Philip J., Naylar, Rahul and Wilkes, Scot (2017) Perceptions of Adolescent Patients of the “Lived Experience” of Type 1 Diabetes. Diabetes Spectrum, 30 (1). pp. 23-35. ISSN 1040-9165

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Kathryn M. King, Philip J. King, Rahul Nayar, Scott Wilkes (2017) Perceptions of Adolescent Patients of the Lived Experience of Type 1 Diabetes.pdf - Published Version
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Abstract

The care and management of adolescents with type 1 diabetes presents numerous challenges that are inherent to the fears, attitudes, and perceptions of their illness. This qualitative study aimed to explore the “lived experience” of individuals with type 1 diabetes. In-depth interviews were conducted with 20 patients diagnosed with type 1 diabetes in their adolescent years to elicit their views, perceptions, and concerns regarding living with diabetes. All interviews were conducted and analyzed using the principles of grounded theory. Five categories defining the patients’ lived experience were elicited: Barriers, Develop Skills, Manage Emotion, Social World, and Health Care Professionals.
The problems experienced by adolescent patients with type 1 diabetes are multi-factorial. Existentially, type 1 diabetes affects their daily activities and impinges on their academic achievement and personal aspirations. They have great difficulty coping with their health status and highlight a lack of empathy from health care professionals (HCPs). Their major fear is of hypoglycaemia, resulting in their subsequent focus of preventing hypoglycemic episodes. Indeed, regardless of consequence, blood glucose levels are often deliberately kept above recommended levels, which serves to decrease the effectiveness of their health care management. This study has shown that the quality of long-term provision of care for adolescent patients with type 1 diabetes is failing to meet their expectations and falls short of the essential standards commensurate with current health care policy. Improvements in long-term care management for these patients require changes in both patients’ and professionals’ understanding of the disease and of the ways it is managed.

Item Type: Article
Additional Information: "This is an author-created, uncopyedited electronic version of an article accepted for publication in Diabetes Spectrum. The American Diabetes Association (ADA), publisher of Diabetes Spectrum, is not responsible for any errors or omissions in this version of the manuscript or any version derived from it by third parties. The definitive publisher-authenticated version will be available in a future issue of Diabetes Spectrum in print and online at http://spectrum.diabetesjournals.org]."
Uncontrolled Keywords: Perceptions, Adolescents, Patients, Lived Experience, Type 1 diabetes, Qualitative Study
Subjects: Sciences > Health Sciences
Divisions: Faculty of Applied Sciences > Department of Pharmacy Health and Wellbeing
Health Sciences and Wellbeing Beacon
Depositing User: Kathryn King
Date Deposited: 22 Feb 2017 16:41
Last Modified: 25 Nov 2017 06:46
URI: http://sure.sunderland.ac.uk/id/eprint/6949

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