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CATCH 2024 meeting summary: Collaborate & Address Treatment Challenges in Haemophilia

Christoforou, Panagiotis, Smith, Clive, McLaughlin, Paul, Benson, Gary, Cleary, Janet, Jones, Adam, Maissis, Guy, Lester, Will, Eales, Marie, Harrison, Cathy, Stephensen, David, Larkin, Niamh, McGowan, Mark, Smith, Mark, Topham, Adam, Player, Denise and Khair, Kate (2025) CATCH 2024 meeting summary: Collaborate & Address Treatment Challenges in Haemophilia. The Journal of Haemophilia Practice, 12 (1). pp. 141-149. ISSN 2055-3390

Item Type: Article

Abstract

Greater treatment choice and the associated flexibility in regimens has necessitated new conversations with people with haemophilia about their personal goals. Innovations in haemophilia treatment drive the need for innovation in care service delivery. Supported by Sobi™, CATCH (Collaborate & Address Treatment Challenges in Haemophilia) is an annual, non-promotional, medical education meeting that brings together members of the haemophilia multidisciplinary team from across the UK and Ireland to discuss all aspects of haemophilia care and management. This report summarises the key issues that were explored and discussed during the CATCH 2024 meeting, including understanding the personal motivations of people with haemophilia and how these influence treatment choices and support; facilitating behaviour change to improve outcomes; reviewing the practicalities and possibilities for eliminating bleeds and new arthropathy in people with haemophilia; and developing new models of care to elevate haemophilia services.

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Additional Information: ** Article version: VoR ** From De Gruyter via Jisc Publications Router ** History: issue 01-01-2025; cover-date 01-01-2025; epub 27-10-2025. ** Licence for VoR version of this article: http://creativecommons.org/licenses/by-nc-nd/4.0 ** Acknowledgements: The CATCH 2024 steering committee were; Gary Benson, Director of the Northern Ireland Haemophilia Centre, Belfast; Kate Khair, Haemnet Ltd; Niamh Larkin Advanced Nurse Practitioner, St James’ Hospital Dublin; Paul McLaughlin, Clinical Specialist Physiotherapist, Royal Free Hospital, London. CATCH 2024 was a non-promotional meeting organised and funded by Sobi™. Medical writing was provided by Haemnet Ltd and funded by Sobi. The views expressed are speaker opinion or summarised audience discussion. Sobi and Sanofi reviewed and provided feedback on this report. The authors had full editorial control of the report and provided their final approval of all content. Sobi™ is a trademark of Swedish Orphan Biovitrum AB (publ).
Uncontrolled Keywords: Patient care, Standard of care, Haemophilia
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SWORD Depositor: Publication Router
Depositing User: Publication Router

Identifiers

Item ID: 19702
Identification Number: 10.2478/jhp-2025-0015
ISSN: 2055-3390
URI: https://sure.sunderland.ac.uk/id/eprint/19702

Users with ORCIDS

ORCID for Clive Smith: ORCID iD orcid.org/0009-0003-9374-2029
ORCID for Paul McLaughlin: ORCID iD orcid.org/0000-0002-5962-7647
ORCID for Gary Benson: ORCID iD orcid.org/0000-0002-4269-8713
ORCID for Adam Jones: ORCID iD orcid.org/0000-0002-7773-1034
ORCID for Guy Maissis: ORCID iD orcid.org/0000-0001-9011-6004
ORCID for Will Lester: ORCID iD orcid.org/0000-0001-8790-7112
ORCID for Marie Eales: ORCID iD orcid.org/0009-0008-3692-5992
ORCID for Cathy Harrison: ORCID iD orcid.org/0000-0002-9336-5249
ORCID for David Stephensen: ORCID iD orcid.org/0000-0002-6175-3343
ORCID for Mark McGowan: ORCID iD orcid.org/0009-0009-4900-4196
ORCID for Mark Smith: ORCID iD orcid.org/0009-0000-9905-353X
ORCID for Adam Topham: ORCID iD orcid.org/0009-0006-0815-4794
ORCID for Denise Player: ORCID iD orcid.org/0009-0002-1366-9830
ORCID for Kate Khair: ORCID iD orcid.org/0000-0003-2001-5958

Catalogue record

Date Deposited: 22 Jan 2026 16:15
Last Modified: 22 Jan 2026 16:15

Contributors

Author: Clive Smith ORCID iD
Author: Paul McLaughlin ORCID iD
Author: Gary Benson ORCID iD
Author: Adam Jones ORCID iD
Author: Guy Maissis ORCID iD
Author: Will Lester ORCID iD
Author: Marie Eales ORCID iD
Author: Cathy Harrison ORCID iD
Author: David Stephensen ORCID iD
Author: Mark McGowan ORCID iD
Author: Mark Smith ORCID iD
Author: Adam Topham ORCID iD
Author: Denise Player ORCID iD
Author: Kate Khair ORCID iD
Author: Panagiotis Christoforou
Author: Janet Cleary
Author: Niamh Larkin

University Divisions

Faculty of Health Sciences and Wellbeing
Faculty of Health Sciences and Wellbeing > School of Nursing and Health Sciences

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