CATCH 2024 meeting summary: Collaborate & Address Treatment Challenges in Haemophilia
Christoforou, Panagiotis, Smith, Clive, McLaughlin, Paul, Benson, Gary, Cleary, Janet, Jones, Adam, Maissis, Guy, Lester, Will, Eales, Marie, Harrison, Cathy, Stephensen, David, Larkin, Niamh, McGowan, Mark, Smith, Mark, Topham, Adam, Player, Denise and Khair, Kate (2025) CATCH 2024 meeting summary: Collaborate & Address Treatment Challenges in Haemophilia. The Journal of Haemophilia Practice, 12 (1). pp. 141-149. ISSN 2055-3390
| Item Type: | Article |
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Abstract
Greater treatment choice and the associated flexibility in regimens has necessitated new conversations with people with haemophilia about their personal goals. Innovations in haemophilia treatment drive the need for innovation in care service delivery. Supported by Sobi™, CATCH (Collaborate & Address Treatment Challenges in Haemophilia) is an annual, non-promotional, medical education meeting that brings together members of the haemophilia multidisciplinary team from across the UK and Ireland to discuss all aspects of haemophilia care and management. This report summarises the key issues that were explored and discussed during the CATCH 2024 meeting, including understanding the personal motivations of people with haemophilia and how these influence treatment choices and support; facilitating behaviour change to improve outcomes; reviewing the practicalities and possibilities for eliminating bleeds and new arthropathy in people with haemophilia; and developing new models of care to elevate haemophilia services.
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| Additional Information: ** Article version: VoR ** From De Gruyter via Jisc Publications Router ** History: issue 01-01-2025; cover-date 01-01-2025; epub 27-10-2025. ** Licence for VoR version of this article: http://creativecommons.org/licenses/by-nc-nd/4.0 ** Acknowledgements: The CATCH 2024 steering committee were; Gary Benson, Director of the Northern Ireland Haemophilia Centre, Belfast; Kate Khair, Haemnet Ltd; Niamh Larkin Advanced Nurse Practitioner, St James’ Hospital Dublin; Paul McLaughlin, Clinical Specialist Physiotherapist, Royal Free Hospital, London. CATCH 2024 was a non-promotional meeting organised and funded by Sobi™. Medical writing was provided by Haemnet Ltd and funded by Sobi. The views expressed are speaker opinion or summarised audience discussion. Sobi and Sanofi reviewed and provided feedback on this report. The authors had full editorial control of the report and provided their final approval of all content. Sobi™ is a trademark of Swedish Orphan Biovitrum AB (publ). |
| Uncontrolled Keywords: Patient care, Standard of care, Haemophilia |
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| SWORD Depositor: Publication Router |
| Depositing User: Publication Router |
Identifiers
| Item ID: 19702 |
| Identification Number: 10.2478/jhp-2025-0015 |
| ISSN: 2055-3390 |
| URI: https://sure.sunderland.ac.uk/id/eprint/19702 |
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Catalogue record
| Date Deposited: 22 Jan 2026 16:15 |
| Last Modified: 22 Jan 2026 16:15 |
| Author: |
Clive Smith
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| Author: |
Paul McLaughlin
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| Author: |
Gary Benson
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| Author: |
Adam Jones
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| Author: |
Guy Maissis
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| Author: |
Will Lester
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| Author: |
Marie Eales
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| Author: |
Cathy Harrison
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| Author: |
David Stephensen
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| Author: |
Mark McGowan
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| Author: |
Mark Smith
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| Author: |
Adam Topham
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| Author: |
Denise Player
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| Author: |
Kate Khair
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| Author: | Panagiotis Christoforou |
| Author: | Janet Cleary |
| Author: | Niamh Larkin |
University Divisions
Faculty of Health Sciences and WellbeingFaculty of Health Sciences and Wellbeing > School of Nursing and Health Sciences
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