Abstract

•Multiagency care of people with learning disabilities is common in community-based settings

•The coronavirus pandemic means those near the end of life may be cared for by staff who are not experienced in this field

•Integrating the voice of carers is vital to understanding communication and providing optimal levels of care

•Developing a national role for learning disability nurses with a specialism in end-of-life care would provide
opportunities for shared learning across care settings

•These nurses could ensure patients’ wishes are communicated to facilitate their dying in accordance with their desires