Abstract

Objectives: The study sought to understand the experiences of patients with thyroid cancer (TC) from their own perspective and to identify the factors that affected their well-being. Design: This was a qualitative study based on semistructured interviews that collected both prospective and retrospective longitudinal data. Setting: Patients were initially recruited from one National Health Service (NHS) Trust and from the contact list of a TC charity. Participants: 25 participants took part in the study: 22 female and 3 male. The inclusion criteria were: (1) adults over 18 years of age; (2) patients diagnosed with papillary or follicular TC within 5 years of diagnosis and (3) patients able to give informed consent. The exclusion criteria were: (1) diagnosis of anaplastic TC; (2) diagnosis of terminal TC with a short life span prediction and (3) codiagnosis of another condition in addition to TC. Results: Patients’ psychological health, physical health, relationships, employment and finances are all likely to be affected by the diagnosis and treatment of TC. Negative factors that affect the overall experience can include a lack of compassion from healthcare professionals, as well as physical side effects after surgery and during recovery. Isolation and loneliness can be significant at many stages, most frequently during treatment with radioactive iodine. Anxiety and fear were widespread among participants. Conclusions: The experiences of TC patients can be challenging, with well-being influenced by treatment effects, psychological distress and the quality of support available. These findings suggest that enhanced patient education, emotional support and follow-up care may help improve well-being, although further research is needed to explore how best to implement such approaches.