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Keates, Nathan, Martin, Farradeh and Waldock, Krysia Emily (2024) Autistic People’s Perspectives on Functioning Labels and Associated Reasons, and Community Connectedness. Journal of Autism and Developmental Disorders. ISSN 0162-3257

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    AcceptedManuscript.pdf - Accepted Version

Abstract

Abstract

Purpose
Functioning labels have been used in relation to autistic people and differentiating between support needs. The main purpose of our study was to identify perspectives regarding language about being autistic. In regard to themselves and functioning. Furthermore, we investigated the influential factor of community connectedness on use of language acceptability and functioning labels.

Methods
516 autistic respondents completed our survey. We asked about demographic characteristics, how respondents would like autistic people to be termed in the survey, and their acceptability (person with autism, Aspergers, disorder, conditions, living with autism, autistic). We also asked about respondents? Autistic Community Connectedness, acknowledging the implicit nature of language and identity (Stets & Serpe in New directions in identity theory and research, Oxford University Press, 2016). The main focus of our survey was whether or not to use functioning labels, and the supporting rationale.

Results
97% of respondents stated that they find the term ‘autistic’ acceptable. Respondents who did see merit in using functioning labels to describe autistic people also reported not necessarily using them about themselves. Community membership was found to impact the participants’ language preferences to describe the support needs of autistic people, including the use of functioning labels.

Conclusion
The proposed best option for language preferences is not to find consensus but instead, opt for the optimal choice that people find the least offensive or disagreeable. This means using identity-first language and not using functioning labels.

Item Type: Article
Additional Information: his version of the article has been accepted for publication, after peer review (when applicable) and is subject to Springer Nature’s AM terms of use, but is not the Version of Record and does not reflect post-acceptance improvements, or any corrections. The Version of Record is available online at: https://doi.org/10.1007/s10803-024-06316-3
Uncontrolled Keywords: autism, language, preferences, functioning labels, identity-first language, person-first language, community, connectedness,
Depositing User: Nathan Keates
URI: https://sure.sunderland.ac.uk/id/eprint/17498

Further Details

More Information

Additional Information
his version of the article has been accepted for publication, after peer review (when applicable) and is subject to Springer Nature’s AM terms of use, but is not the Version of Record and does not reflect post-acceptance improvements, or any corrections. The Version of Record is available online at: https://doi.org/10.1007/s10803-024-06316-3
Uncontrolled Keywords
autism, language, preferences, functioning labels, identity-first language, person-first language, community, connectedness,
Depositing User

Identifiers

Item ID
17498
Identification Number
ISSN
0162-3257

Users with ORCIDS

ORCID for Nathan Keates
ORCID for Farradeh Martin
ORCID for Krysia Emily Waldock

Catalogue record

Date Deposited
03 Apr 2024 09:34
Last Modified
03 Jun 2025 15:56

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